Lung Cancer Awareness Month
In the summer of 2020, Simon Bell, 57, lost his life to lung cancer, leaving his family behind and a vision of a fair life for patients and caregivers.
Only 2 months later, Simon’s vision was realized by his wife Korina Pateli-Bell.
The first non-profit social organization in Greece, exclusively dedicated to lung cancer, was founded.
Our pain becomes a seed of power for FairLife!
- With many enthusiastic partners and over 100 volunteers
- With over 70 distinguished Greek and international scientists
- With organizations and scientific bodies in the field at national and global level.
FairLife L.C.C. – The 1st year
In 2021, FairLife L.C.C. has been planning actions, focusing on patients’ needs, from diagnosis to treatment, as well as on informing the public on lung cancer prevention and early diagnosis:
Information – Awareness
- Updating the FairLife website with information on the latest developments in lung cancer.
- Creation of a digital informative library on lung cancer “Learn-Act-Hope”. The library is enriched with interviews, talks and audiovisual material and offers simple and accessible information about the disease and its prevention.
- Implementation of a Lung Cancer Information and Support Line | FairLine 111 57.
- Organization of a scientific online conference, entitled “Lung Cancer- prevention and early diagnosis: Lung Cancer Screening programme in Greece, are we ready?”(November 2021)
- The results of the study conducted by the Health Policy Institute, under the scientific supervision of Professor Kyriakos Souliotis and Dr. Evi Hatziandreou, Public Health Expert and Vice President of FairLife L.C.C., were presented at the conference. The study was conducted for the first time in Greece, in collaboration with FairLife. Based on a predictive, stochastic model, screening leads to a significant reduction in lung cancer deaths by 24.61% and a reduction in years of life years lost by 30.9%. The above figures are in line with similar studies in other countries.
Informative Campaigns
Brand Ambassadors
FairLife meets inspiring people, of all ages, and together they rally to a common cause.
The world’s oldest windsurfer, Anastasia Gerolymatou, the distinguished mountaineers Kiki Tsakaldimi, Nikos Magitsis and the high school student Orestis-Fotis Mikelakis, as a representative of the new generation, fighting against smoking, become FairLife’s first brand ambassadors.
They represent the power of will beyond limits.
They send the message “Let Life take your Breath Away! Not Lung Cancer!” to the ends of the earth.
Auspices – Participation
A joint effort to inform and raise awareness about lung cancer.
Under FairLife’s auspices:
- “forame lefko” campaign (Jan. 2021 & 2022 ) by Roche,
- “Don’t wait” campaign (June 2021) by AstraZeneca – LungAmbitionAlliance,
- ERS invitation to endorse open letter on increasing lung cancer early diagnosis (June 2021),
- Cancer Information & Awareness Week (Sept. 2021) by the Oncology Department of St. Andreas General Hospital of Patras.
- 15th online Conference “Patients’ Steps” (Nov. 2021) on Lung Cancer of iatronet.gr,
- “LIVE EVERY BREATH “ campaign by BMS (Nov. 2022)
- “EARLY DIAGNOSIS IS TIME” campaign by MSD. (Dec. 2022)
FairLife L.C.C. supported:
- the event “Heart Steps, life breaths “, hosted by the Hellenic Society of Thoracic & Cardiovascular Surgeons (Oct. 2021)
- the social initiative “Breath of Life” by the Hellenic Thoracic Society, regarding lung cancer prevention (June 2022).
- the awareness campaign “FIND KRAS G12C” (Sept. 2022), in collaboration with Amgen.
International presence
Korina Pateli-Bell, President of FairLife, is elected Treasurer, as a member of the Board of Directors of Lung Cancer Europe (May 2021). She is also a member of the Patient Research advocate program STARS – IASLC.
She actively participates in international meetings, aimed at preventing lung cancer and offering support to patients and caregivers.
2022 – FairLife becomes a socially dynamic organization
FairLife’s 2nd year builds on the knowledge and experience, gained since the organization’s founding. We continue to take action and reinforce our activities. New programmes are being implemented, always focusing on supporting lung cancer patients holistically.
Information – Awareness
- The digital informative library on lung cancer “Learn-Act-Hope”. is updated and enriched.
- An online event is scheduled to present the results of the student competition and the launching of a new anti-smoking campaign. (May 2022)
- Thematic webinars, entitled “The patient’s journey”, inform about prevention, diagnosis, biomarkers, personalised treatments. (June 2022)
- BREATH, a Program for Psychosocial Support, is offered nationwide, free of charge, to lung cancer patients, their family and caregivers, in collaboration with experienced and qualified mental health professionals. (Aug 2022)
- The new series of short informational broadcasts, entitled “14 Minutes of Life”, provide simple and clear answers to questions, raised by lung cancer patients and their caregivers.
- A scientific conference “Lung Cancer in the Age of Innovation – the importance of early screening, new therapeutic approaches – A modern approach to molecular testing and clinical studies in Greece” is hosted at the B & E Goulandris Foundation. (November 2022)
Actions – Campaigns
Brand Ambassadors
FairLife’s family welcomes three new members from the world of sport, to support the fight for healthy lungs, contact with nature, exercise and healthy lifestyle. The new FairLife Ambassadors are Olympic champions, Ioannis Fountoulis and Byron Kokkalanis and Greek champion Zisis Soulios.
FairLife’s ongoing presence in Greece and abroad
The fight against lung cancer requires collaboration and outreach.
FairLife interacts with lung cancer organizations and institutions, both in Greece and abroad, to promote its goals and messages.
Participation in conferences:
Publicity (2021 – October 2022)
16.000
social media followers
>2.000.000
unique people reached on social media
>1.000.000
video views on Facebook & Instagram
~ 15.000
watch hours on Facebook & YouTube
~ 80.000
website visits
120
press publications
1.373
web publications
Participation in TV and radio:
- Radio broadcast “Prosfero” of the First Program
- Radio broadcast “Efarmogi Thessaloniki” about the Ascent to the Highest Peak of Europe by FairLife’s ambassador, Kiki Tsakaldimi.
- Radio broadcast “Keraia” with Rea Vitali, ERT1, “Palliative care in Greece”. (Dec.2021)
- Radio broadcast “Connections”, ERT1, on the necessity to prevent lung cancer. (Apr.2022)
The reward
FairLife’s two years of efforts alongside lung cancer patients, families and caregivers are recognized and rewarded.
Patient Partnerships Awards 2022 event:
- Gold Award for creating of the lung cancer digital informative library ‘Learn-Act-Hope’.
- Gold Award for the antismoking youth campaign “The first generation without smoke, without vaping”.
- Bronze Award for the organization’s initiatives on screening and improving the quality of patients’ lives and vulnerable social groups.
Healthcare Business Awards 2022 event:
- Bronze award in the category “Actions aimed at information, awareness, and prevention”.
These distinctions are a special honour and a moral reward. They fill us with joy and responsibility to stay true to our vision.
We also take great pleasure from the public response through our social media. The numbers continue to grow and the love of people, patients and caregivers has become our guide. To a world without lung cancer.
Paving the way for 2023
Lung cancer is a complex, “invisible” disease.
We have achieved a lot, with the support of so many people, but there is still so much to do.
- On the occasion of the World Awakening and Motivation Days, we are updating our actions. Our golas :
- To inform and raise awareness about lung cancer,
- To insist on prevention and equal access to innovative treatments and clinical trials,
- To promote mental health and wellness issues.
- We are breaking prejudices by preparing the STIGMA campaign, which addresses the stigma, experienced by lung cancer patients, regarding their smoking habits.
- FairLife is now empowered by national and international partnerships, its experience as well as its acceptance by the world and the scientific community. The fight against lung cancer is carried on with optimism and hope.
The patient and his/her family environment are always at the core of our efforts. We are determined to claim for lung cancer patients the care and fair life they deserve.
Many thanks to our dedicated team and all supporters who have joined us to make Simon Bell’s vision a reality…
OFFICE CONCESSION
SERVICES SUPPORTERS
The battle that, however hard we tried, we could not unfortunately win. The hardest part of being diagnosed with an inoperable cancer is not what I’m going through, but seeing how much my family is suffering…
Simon Bell